UPDATE
- Updated core bibliography of consumer health reference books
NETNEWS
- Search engine tutorials
- Need medical advice? Ask the experts on the Internet
- Johns Hopkins' new consumer health website
- U.S. government launches new website
FOR YOUR CONSIDERATION
- Reviews of new consumer health books:
*Informed decisions: the complete book of cancer diagnosis, treatment, and recovery
*The Yale guide to children's nutrition
*When a parent has cancer: a guide to caring for your children
UCHC RECENT ACQUISITIONS
- New consumer health books in the Health Center Library:
*Fibromyalgia and chronic myofascial pain syndrome: a survival manual
*Living with Parkinson's disease
*Nutrition almanac
*Your dieting daughter: is she dying for attention?
UPDATED CORE BIBLIOGRAPHY OF CONSUMER HEALTH REFERENCE BOOKS
Healthnet recently updated the December 1996 version of the Core Bibliography of Consumer Health Reference Books. This is an annotated list of 72 medical reference books recommended for public library collections. As a subscriber to this newsletter, you are entitled to a free copy, or you can see the updated list (after June 1) on our homepage at: http:www3.uchc.edu../../departm/hnet. If you would like a print copy of the list, call 860/679-4055 or email richetelle@nso.uchc.edu. Questions and comments regarding the list are welcome.
SEARCH ENGINE TUTORIALS
If you are just starting out searching the Internet and have experimented
with some of the search engines, you may be interested in looking
at several search engine tutorials. The following tutorials
will provide you with a better understanding of how search engines
work, why they often don't work, and will teach you how to become
a more proficient searcher.
The University of Connecticut Health Center Library has
a search engine tutorial on its website. Created by Elizabeth
Connor, Head of the Library's Information Services Department,
the tutorial describes the history of search engines, how they
work, the difference between directories and search engines, and
advice on which ones yield more reliable results. For more
information, go to:
../../eduoff/searchw.html.
Another search engine tutorial worth taking a look at is one developed
by Sarah Brown of the Yale University Library. This tutorial
covers similar material as the one from the UCHC Library. The
Yale site also discusses meta search engines. Meta search engines
are essentially search engines of search engines. Each conducts
simultaneous searches of different search engines, anywhere from
two to twenty-three, and returns results from all of them. All
but one meta search engine returns the results in one set, listing
the most relevant hits first. For more information, go to:
http://www.library.yale.edu/ref/internet-search/search.html.
Also, take a look at a tutorial developed at the Indiana University
at Bloomington (IUB)
http://www.indiana.edu/~librcsd/search/ by Jian Liu of the Reference Department, IUB Libraries. This
tutorial offers tips and advice on using six of the more popular
search engines.
NEED MEDICAL ADVICE? ASK THE EXPERTS ON THE INTERNET
Many sites on the WWW offer a special feature called "Ask
the Expert" where visitors to the site can pose a personal
health question and have it answered by a physician or other health
professional. Usually these sites caution visitors that this
special feature should not be used for advice on illnesses that
may need immediate attention nor are the "experts" able
to personally answer individual questions submitted by email.
The usual procedure is to email a question after which the question
is reviewed and selected for posting. Most of these sites offer
background information about their "experts", although
often some of the information is incomplete. The following are
some of the more unique sites with an "Ask the Expert"
feature:
Ask Dr. Weil - http://wwww.hotwired.com/drweil/
Andrew Weil, MD is a busy man. Just in the past few weeks I've
seen him on a PBS special and also on the cover of Time
magazine. Weil's popularity is due in part to growing interest
in alternative and complementary therapies for diseases and medical
conditions. His question and answer website offers advice on
natural treatments for everything from sprained ankles to allergies
and arthritis. Visitors are advised to read previously posted
questions and answers before submitting a question of their own,
in case their question may have already been answered.
Dr. Greene's Housecalls - http://www.drgreene.com/
Dr. Alan Greene, M.D. and Fellow of the American Academy of Pediatrics
has developed his own website for anxious parents who want information
about their child's health. Visitors can submit their questions
via email. Usually questions that have universal appeal are considered
for posting, however some recent questions dealt with rather esoteric
topics. Questions and answers are posted on the site and there
are searchable archives. Dr. Green's answers are thorough and
often include links to important sites for additional information.
Mayo Clinic Health O@asis - http://www.mayo.ivi.com/
This relatively new website, offered by Mayo Clinic, features
health information for consumers in several broad subject categories,
including diseases and medical conditions, pregnancy and childbirth,
women's health, diet and nutrition, cancer, and heart disease.
Two prominent features include "Ask the Mayo Doctor"
and "Ask the Mayo Dietitian". Visitors can email questions
for each expert to answer or view answers to questions submitted
by other visitors. Credentials for the experts are not listed,
although an introductory statement implies that the experts are
Mayo Clinic staff.
Parents Place -http://www.parentsplace.com/readroom
This is one of my favorite sites. I like its special features,
practical and timely advice, and the fact that it's easy to navigate.
Yes, it's a commercial site and they do sell products, but they
sell in such a way that it does not intrude on the excellent information
they have for parents. This site has a comprehensive "Ask
the Expert" feature. Readers can pose their questions to
a midwife, doctor, dentist, breastfeeding expert, nutritionist,
lawyer, preschool teacher, teen expert, or to gender experts.
As with the other sites offering a similar feature, visitors
are advised to read answers to posted questions from others to
see if their question has already been answered.
Children With Diabetes - http://www.castleweb.com/diabetes/dteam/d_0d_000.htm
This website offers an "Ask the Diabetes Team" feature,
allowing parents of children with diabetes to pose questions to
a team of experts which includes medical doctors specializing
in pediatric diabetes, several pediatric endocrinologists, a nurse
specialist, and an exercise physiologist. Visitors to the site
can view answers to questions submitted by other parents or by
health professionals or submit questions of their own.
Arthritis Foundation -
http://www.arthritis.org/forms/ask_help.shtml
The Arthritis Foundation offers visitors to their website an opportunity
to ask general questions about arthritis, arthritis-related conditions
(such as fibromyalgia and osteoporosis), living with the disease
and medications in general. The Foundation will not answer individual
medical questions about personal treatments or medication plans.
Answers are sent via email within 24 to 48 hours and by regular
mail within a week to ten days. Although there are no archives
of questions submitted, there is a link to the Foundation's homepage
that has answers to frequently asked questions about arthritis
and its treatment.
InteliHealth - http://www.intelihealth.com
See the following description about this new website and its
"Ask the Experts" feature.
JOHNS HOPKINS' NEW CONSUMER HEALTH WEBSITE
Johns Hopkins University has launched a new website for consumer
health information. InteliHealth at http://www.intelihealth.com
offers the public authoritative information on topics related
to the health of children and adults. Information is currently
available on diseases and medical conditions, allergies, asthma,
and medications. Future plans are to add topics on sports medicine,
women's health, men's health, pain relief, exercise, and sexual
health. Free access is also provided to the MEDLINE database
and to MDX, a database of medical journal articles with consumer
summaries.
Users can also access drug information provided by the USP
DI Advice for the Patient and other USP publications. Other
features include top medical news of the day, health risk appraisal
quizzes, pollen reports, and an opportunity to have your medical
question answered by their team of experts. Visitors can read
answers to questions submitted by others or send in a question
of their own. The entire InteliHealth site is searchable.
InteliHealth also lists a series of 12 "White Papers"
written by specialists at Johns Hopkins. These 48 to 72 page
special reports are bound and illustrated and cover common medical
conditions such as arthritis, coronary heart disease, depression
and anxiety, and low back pain. A brief synopsis is given for
each report. The complete report may be ordered electronically
for $19.95 each plus shipping and handling.
Other Johns Hopkins products can also be ordered. These include
a subscription to their newsletter Health After 50, several
medical and health CD-ROM databases, and health care products
from their catalog. Be prepared to wait if you decide to take
a look at this site, since pages are exceedingly slow to load.
U.S. GOVERNMENT LAUNCHES NEW WEBSITE
Healthfinder - http://www.healthfinder.gov/ is the U.S.
Department of Health and Human Services gateway to consumer health
information resources from the federal government, state and
local agencies, not for profit organizations, and universities.
Federal agencies represented include the Administration on Aging,
Agency for Toxic Substances and Disease Registry, Food and Drug
Administration, Centers for Disease Control and Prevention, the
National Institutes of Health, and others.
Special features of Healthfinder include a news section which
offers press releases from government agencies, links to websites
with current medical and health related news stories, and links
to online journals. Other features include a list of toll-free
numbers for health information, links to self-help groups and
organizations, and links to online discussion groups.
The Online Publications section allows users to search for online
publications, publications catalogs, and websites featuring electronic
documents by entering a key word or browsing a list. This section
also allows users to browse medical dictionaries available online.
The Libraries section mentions that healthfinder had its roots
in a project to improve dissemination of Federal consumer health
information through public libraries. They recommend that public
libraries are a good place to start a search for information.
Links are included to the American Library Association, other
public library sites, the National Library of Medicine, and medical
and health sciences libraries.
This is a valuable website that organizes a vast amount of consumer
health information resources for easy access.
Back to the Table of Contents
The following recently published books may be of interest to public
libraries and health sciences libraries that have consumer health
collections. These books are not part of the Health
Center Library collection.
Informed decisions: the complete book of cancer diagnosis,
treatment, and recovery. Gerald Murphy, Lois B. Morris, and
Dianne Lange. American Cancer Society. Viking, 1997. 689 p.
(ISBN 0-670-85370-4), $39.95.
This long awaited updated guide to cancer from the American Cancer
Society was worth the wait. Much improved from their earlier
work (American Cancer Society cancer book, 1985), this
new guide offers the latest information on cancer diagnosis and
treatment. Topics include screening for cancer, diagnostic tests,
cancer causes and risks, and developing a support network. The
section on treatments describes the basic principles of treatment,
chemotherapy, biological therapies, bone marrow transplant, surgery
and radiation, investigational treatments, and alternative and
complementary therapies.
The tone of the section on alternative and complementary therapies
is quite different from the earlier work. Then the words "alternative"
and "complementary" were synonyms for "quackery".
The new edition recognizes that many of these therapies may have
some merit and deserve further scientific research.
An encyclopedia of common and uncommon cancers describes the risks,
signs, symptoms, diagnosis, and treatment of specific types of
cancer. Each discussion includes a section alerting the reader
to controversies related to the treatment of the cancer. Clinical
trials and new or experimental treatments are also covered.
This information is offered to help the patients more effectively
discuss treatment options with their doctor.
Appendixes include a directory of resources and a guide to cancer
information online, which lists cancer databases and Internet
resources. This is an essential guide for all public and health
sciences libraries.
The Yale guide to children's nutrition. William V.
Tamborlane and Janet Z. Weiswasser. Yale University Press, 1997.
415 p. (ISBN 0-300-07169-8), $40.00; (ISBN 0-300-0007169-8),
pap. $18.00.
This new guide to children's nutrition covers all the topics most
parents are interested in and then some. While short on practical
advice in many of the subject areas, some of the topics covered
are often not found in other similar nutrition books.
The standard topics covered include normal growth and development,
basic nutrition, feeding from infancy through adolescence, overweight
children, the picky eater (aren't they all?), and vegetarianism
and children's health. Special topics include childhood obesity,
food allergies, high blood cholesterol, the child with cystic
fibrosis or diabetes, feeding the child with cleft lip and palate,
and diet and the child with Attention Deficit Hyperactivity Disorder.
A chapter on fast foods and restaurants gives advice on choosing
more healthful menu selections.
A section with recipes (there are 67) includes imaginative dishes
from the "most respected chefs in the United States".
Recipes for infants include carrot and potato puree and french
green lentil and rice puree. Dishes for older children include
banana split pancakes, cantaloupe soup, waldorf tuna salad, peanut
butter bread (not the spread on the bread kind), and baked elbow
pasta with shrimp and zucchini. Don't worry - desserts haven't
been ignored. How does maple glazed tropical fruit salad sound,
or perhaps super cherry tiramisu?
Growth charts, recipe conversion tables, and recommended dietary
allowances are included in appendixes.
When a parent has cancer: a guide to caring for
your children. Wendy Schlessel Harpham. HarperCollins,
1997. 164 p. (ISBN 0-06-018709-3), $24.00.
A diagnosis of cancer can be particularly devastating for parents
of young children. How can the parent face treatments and
long periods of recovery and still care responsibly for their
children and at the same time answer the many questions that arise
about the illness.
Wendy Harpham's helpful book gives parents who have cancer the
expert guidance they need to help their children through a parent's
diagnosis and treatment, remission and recovery, and, if necessary,
confronting the possibility of death. Harpham, who is a physician
and the mother of three young children, speaks from experience
having lived through a diagnosis and subsequent treatment for
non-Hodgkins lymphoma. Her earlier books (Diagnosis cancer:
your guide through the first few months, 1992; After cancer:
a guide to your new life, 1994) chronicled her struggle
in fighting the disease and coping with its consequences.
With understanding and sensitivity, she discusses ways to meet
the child's fundamental needs and emphasizes the importance of
being honest about the gravity of the illness. The emphasis here
is on helping the children cope with changes in their lives while
at the same time fostering their need for reassurance and a sense
of security. Harpham also expertly covers dealing with loss,
grief, and fear, using play as a therapeutic tool, helping children
tame their fear of death, and the special needs of teenagers,
single parents, and the well spouse.
Included with this guide is an illustrated childen's book called
"Becky and the worry cup", which tells the story of
a seven-year old girl's experiences with her mother's cancer.
The book can be read by children alone or together with a parent.
A glossary and a list of resources are also included
Back to the Table of Contents
The following titles were recently added to the UCHC Library collection
and may be of interest to public libraries:
Fibromyalgia and chronic myofascial pain syndrome
: a survival manual. Devin Starlanyl and Mary Ellen
Copeland. New Harbinger Publications, 1996. 401 p. (ISBN 1-57224-046-6),
$19.95. UCHC Library Call #:WE/544/S795/1996.
Twenty-six million Americans suffer from fibromyalgia (FM) or
myofascial pain syndrome (MPS). The symptoms of both of these
conditions include chronic, widespread musculoskeltal pain, accompanied
by multiple tender or trigger points, painful or restricted movement,
and persistent fatigue. Often these conditions are misdiagnosed
and patients may spend many years searching for a specific reason
for their symptoms.
This comprehensive guide offers advice on managing these conditions.
Descriptions are given for each, including similarities and differences
between the two. Patients are taught how to evaluate their own
symptoms and to identify the tender or trigger points that are
crucial for treating them. Up to date information on treatments
is offered, including medications, a nutritional program, exercise,
and other "healing tools".
Life issues such as managing the conditions in order to keep working,
disability rights, travel, and finding a primary care physician
are also discussed. A list of resources, a reading list, and
a directory of suppliers of health care items are included in
appendixes.
Living with Parkinson's disease. Kathleen E. Biziere
and Matthias C. Kurth. Demos Vermande, 1997. 160 p. (ISBN
1-888799-10-2), $24.95 (UCHC Library Call #: WL/359/B625/1997.
This book was written for those who have been diagnosed with Parkinson's
disease, their family members and friends, and for physicians
and health care providers. The content is divided into two main
sections: the disease and its management and research aimed at
improving the management of Parkinson's disease. The first section
describes what the disease is, how it is treated and managed,
surgical treatments, and promoting optimal health while living
with Parkinson's disease.
The second section gives a helpful overview of research currently
being conducted on treatments for Parkinson's disease. More
specifically, developments in improving the effectiveness of levodopa,
the search for longer acting agents, and improvements in the management
of late-stage complications of the disease are discussed. Information
on clinical trials and their role in the development of new therapies
is covered in a separate chapter. Although somewhat technical,
this information can be valuable for many patients and their
families. A glossary and a brief list of resources are included.
Nutrition almanac. 4th ed. Gayla J. Kirschmann and John
D. Kirschmann. McGraw-Hill, 1996. 494 p. (ISBN 0-07-034922-3),
$16.95. UCHC Library Call #:QU/145/K61/1996.
This purpose of this nutrition guide is to help readers develop
a personal nutrition plan and to serve as a handy reference to
quickly answer simple questions regarding food, nutrition, and
health. General topics covered include the role of nutrition
and health, exercise, basic components of foods, vitamins and
minerals, and diseases and medical conditions that may result
from an imbalanced intake of nutrients. Herbs are also discussed
with a brief summary of common types and how herbs may be used
to treat or prevent common ailments. Food composition tables
are included as are discussions of specific foods and beverages.
Although a bibliography is included, this guide's main drawback
is the lack of specific references to research related to the
subjects covered. The bibliography includes, for the most
part, secondary sources, most of which are popular nutrition books.
Credentials of the authors are not given, except for a brief
mention that John D. Krischmann is director of his own nutrition
consulting company and that his daughter Gayla works for him.
This is an optional purchase for public libraries and for health
sciences libraries. For more complete and authoritative nutrition
information try The concise encyclopedia of foods and nutrition
or The American Dietetic Association's complete food and nutrition
guide.
Your dieting daughter : is she dying for attention?
Carolyn Costin. Brunner Mazel, 1997. 217 p. (ISBN 0-87630-836-1),
$19.95. UCHC Library Call #: WM/175/C844y/1997.
Over fifty percent of females between the ages of 11 and 13 see
themselves as overweight. By the age of 13, 80 percent have attempted
to lose weight and 10 percent report the use of self-induced
vomiting to achieve their weight loss goal. Dieting to extremes,
or anorexia and bulimia, have become serious health issues facing
young girls. Parents are often at a loss to know how to deal
with the complex issues related to these conditions.
This guide, written by the director of the Eating Disorder Center
of California who is also a recovered anorexic, offers helpful
advice for parents and other family members. Costin describes
the symptoms of the conditions, their psychological causes, and
how the conditions can be prevented. Expert guidance with concrete
examples is given to help parents cope with different situations
that may occur.
Costin also analyzes factors in our society that contribute to
the development of these disorders. She offers a useful evaluation
of popular weight loss programs, how they are supposed to work
and why they often are not successful. Appendixes include a minicourse
on nutrition, a table of recommended daily allowances, a list
of resources, and a bibliography.
(c) 1997 University of Connecticut Health Center. All rights
reserved.
NET NEWS
FOR YOUR CONSIDERATION
UCHC RECENT ACQUISITIONS
If you have questions about anything in the newsletter or about
Healthnet services for Connecticut public libraries,
please call 860/679-4055; e-mail address:
richetelle@nso.uchc.edu.
Lyman Maynard Stowe Library
University of Connecticut Health Center
Farmington, Connecticut
The URL for this page is http://library.uchc.edu/departm/hnet/spring97.html