HEALTHNET NEWS VOL. XIII, NO. 1 SPRING 1997
Lyman Maynard Stowe Library
University of Connecticut Health Center

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TABLE OF CONTENTS

UPDATE
- Updated core bibliography of consumer health reference books
NETNEWS
- Search engine tutorials
- Need medical advice? Ask the experts on the Internet
- Johns Hopkins' new consumer health website
- U.S. government launches new website
FOR YOUR CONSIDERATION
- Reviews of new consumer health books:
   *Informed decisions: the complete book of cancer diagnosis, treatment, and recovery
   *The Yale guide to children's nutrition
   *When a parent has cancer: a guide to caring for your children
UCHC RECENT ACQUISITIONS
- New consumer health books in the Health Center Library:
   *Fibromyalgia and chronic myofascial pain syndrome: a survival manual
  *Living with Parkinson's disease
  *Nutrition almanac
  *Your dieting daughter: is she dying for attention?


UPDATE

UPDATED CORE BIBLIOGRAPHY OF CONSUMER HEALTH REFERENCE BOOKS

Healthnet recently updated the December 1996 version of the Core Bibliography of Consumer Health Reference Books. This is an annotated list of 72 medical reference books recommended for public library collections. As a subscriber to this newsletter, you are entitled to a free copy, or you can see the updated list (after June 1) on our homepage at: http:www3.uchc.edu../../departm/hnet. If you would like a print copy of the list, call 860/679-4055 or email richetelle@nso.uchc.edu. Questions and comments regarding the list are welcome.

NET NEWS

SEARCH ENGINE TUTORIALS

If you are just starting out searching the Internet and have experimented with some of the search engines, you may be interested in looking at several search engine tutorials. The following tutorials will provide you with a better understanding of how search engines work, why they often don't work, and will teach you how to become a more proficient searcher.

The University of Connecticut Health Center Library has a search engine tutorial on its website. Created by Elizabeth Connor, Head of the Library's Information Services Department, the tutorial describes the history of search engines, how they work, the difference between directories and search engines, and advice on which ones yield more reliable results. For more information, go to: ../../eduoff/searchw.html.

Another search engine tutorial worth taking a look at is one developed by Sarah Brown of the Yale University Library. This tutorial covers similar material as the one from the UCHC Library. The Yale site also discusses meta search engines. Meta search engines are essentially search engines of search engines. Each conducts simultaneous searches of different search engines, anywhere from two to twenty-three, and returns results from all of them. All but one meta search engine returns the results in one set, listing the most relevant hits first. For more information, go to: http://www.library.yale.edu/ref/internet-search/search.html.

Also, take a look at a tutorial developed at the Indiana University at Bloomington (IUB) http://www.indiana.edu/~librcsd/search/ by Jian Liu of the Reference Department, IUB Libraries. This tutorial offers tips and advice on using six of the more popular search engines.

NEED MEDICAL ADVICE? ASK THE EXPERTS ON THE INTERNET

Many sites on the WWW offer a special feature called "Ask the Expert" where visitors to the site can pose a personal health question and have it answered by a physician or other health professional. Usually these sites caution visitors that this special feature should not be used for advice on illnesses that may need immediate attention nor are the "experts" able to personally answer individual questions submitted by email. The usual procedure is to email a question after which the question is reviewed and selected for posting. Most of these sites offer background information about their "experts", although often some of the information is incomplete. The following are some of the more unique sites with an "Ask the Expert" feature:

Ask Dr. Weil - http://wwww.hotwired.com/drweil/

Andrew Weil, MD is a busy man. Just in the past few weeks I've seen him on a PBS special and also on the cover of Time magazine. Weil's popularity is due in part to growing interest in alternative and complementary therapies for diseases and medical conditions. His question and answer website offers advice on natural treatments for everything from sprained ankles to allergies and arthritis. Visitors are advised to read previously posted questions and answers before submitting a question of their own, in case their question may have already been answered.

Dr. Greene's Housecalls - http://www.drgreene.com/

Dr. Alan Greene, M.D. and Fellow of the American Academy of Pediatrics has developed his own website for anxious parents who want information about their child's health. Visitors can submit their questions via email. Usually questions that have universal appeal are considered for posting, however some recent questions dealt with rather esoteric topics. Questions and answers are posted on the site and there are searchable archives. Dr. Green's answers are thorough and often include links to important sites for additional information.

Mayo Clinic Health O@asis - http://www.mayo.ivi.com/

This relatively new website, offered by Mayo Clinic, features health information for consumers in several broad subject categories, including diseases and medical conditions, pregnancy and childbirth, women's health, diet and nutrition, cancer, and heart disease. Two prominent features include "Ask the Mayo Doctor" and "Ask the Mayo Dietitian". Visitors can email questions for each expert to answer or view answers to questions submitted by other visitors. Credentials for the experts are not listed, although an introductory statement implies that the experts are Mayo Clinic staff.

Parents Place -http://www.parentsplace.com/readroom

This is one of my favorite sites. I like its special features, practical and timely advice, and the fact that it's easy to navigate. Yes, it's a commercial site and they do sell products, but they sell in such a way that it does not intrude on the excellent information they have for parents. This site has a comprehensive "Ask the Expert" feature. Readers can pose their questions to a midwife, doctor, dentist, breastfeeding expert, nutritionist, lawyer, preschool teacher, teen expert, or to gender experts. As with the other sites offering a similar feature, visitors are advised to read answers to posted questions from others to see if their question has already been answered.

Children With Diabetes - http://www.castleweb.com/diabetes/dteam/d_0d_000.htm

This website offers an "Ask the Diabetes Team" feature, allowing parents of children with diabetes to pose questions to a team of experts which includes medical doctors specializing in pediatric diabetes, several pediatric endocrinologists, a nurse specialist, and an exercise physiologist. Visitors to the site can view answers to questions submitted by other parents or by health professionals or submit questions of their own.

Arthritis Foundation - http://www.arthritis.org/forms/ask_help.shtml

The Arthritis Foundation offers visitors to their website an opportunity to ask general questions about arthritis, arthritis-related conditions (such as fibromyalgia and osteoporosis), living with the disease and medications in general. The Foundation will not answer individual medical questions about personal treatments or medication plans. Answers are sent via email within 24 to 48 hours and by regular mail within a week to ten days. Although there are no archives of questions submitted, there is a link to the Foundation's homepage that has answers to frequently asked questions about arthritis and its treatment.

InteliHealth - http://www.intelihealth.com

See the following description about this new website and its "Ask the Experts" feature.

JOHNS HOPKINS' NEW CONSUMER HEALTH WEBSITE

Johns Hopkins University has launched a new website for consumer health information. InteliHealth at http://www.intelihealth.com offers the public authoritative information on topics related to the health of children and adults. Information is currently available on diseases and medical conditions, allergies, asthma, and medications. Future plans are to add topics on sports medicine, women's health, men's health, pain relief, exercise, and sexual health. Free access is also provided to the MEDLINE database and to MDX, a database of medical journal articles with consumer summaries.

Users can also access drug information provided by the USP DI Advice for the Patient and other USP publications. Other features include top medical news of the day, health risk appraisal quizzes, pollen reports, and an opportunity to have your medical question answered by their team of experts. Visitors can read answers to questions submitted by others or send in a question of their own. The entire InteliHealth site is searchable.

InteliHealth also lists a series of 12 "White Papers" written by specialists at Johns Hopkins. These 48 to 72 page special reports are bound and illustrated and cover common medical conditions such as arthritis, coronary heart disease, depression and anxiety, and low back pain. A brief synopsis is given for each report. The complete report may be ordered electronically for $19.95 each plus shipping and handling.

Other Johns Hopkins products can also be ordered. These include a subscription to their newsletter Health After 50, several medical and health CD-ROM databases, and health care products from their catalog. Be prepared to wait if you decide to take a look at this site, since pages are exceedingly slow to load.

U.S. GOVERNMENT LAUNCHES NEW WEBSITE

Healthfinder - http://www.healthfinder.gov/ is the U.S. Department of Health and Human Services gateway to consumer health information resources from the federal government, state and local agencies, not for profit organizations, and universities. Federal agencies represented include the Administration on Aging, Agency for Toxic Substances and Disease Registry, Food and Drug Administration, Centers for Disease Control and Prevention, the National Institutes of Health, and others.

Special features of Healthfinder include a news section which offers press releases from government agencies, links to websites with current medical and health related news stories, and links to online journals. Other features include a list of toll-free numbers for health information, links to self-help groups and organizations, and links to online discussion groups.

The Online Publications section allows users to search for online publications, publications catalogs, and websites featuring electronic documents by entering a key word or browsing a list. This section also allows users to browse medical dictionaries available online.

The Libraries section mentions that healthfinder had its roots in a project to improve dissemination of Federal consumer health information through public libraries. They recommend that public libraries are a good place to start a search for information. Links are included to the American Library Association, other public library sites, the National Library of Medicine, and medical and health sciences libraries.

This is a valuable website that organizes a vast amount of consumer health information resources for easy access.

Back to the Table of Contents

FOR YOUR CONSIDERATION

The following recently published books may be of interest to public libraries and health sciences libraries that have consumer health collections. These books are not part of the Health Center Library collection.

Informed decisions: the complete book of cancer diagnosis, treatment, and recovery. Gerald Murphy, Lois B. Morris, and Dianne Lange. American Cancer Society. Viking, 1997. 689 p. (ISBN 0-670-85370-4), $39.95.

This long awaited updated guide to cancer from the American Cancer Society was worth the wait. Much improved from their earlier work (American Cancer Society cancer book, 1985), this new guide offers the latest information on cancer diagnosis and treatment. Topics include screening for cancer, diagnostic tests, cancer causes and risks, and developing a support network. The section on treatments describes the basic principles of treatment, chemotherapy, biological therapies, bone marrow transplant, surgery and radiation, investigational treatments, and alternative and complementary therapies.

The tone of the section on alternative and complementary therapies is quite different from the earlier work. Then the words "alternative" and "complementary" were synonyms for "quackery". The new edition recognizes that many of these therapies may have some merit and deserve further scientific research.

An encyclopedia of common and uncommon cancers describes the risks, signs, symptoms, diagnosis, and treatment of specific types of cancer. Each discussion includes a section alerting the reader to controversies related to the treatment of the cancer. Clinical trials and new or experimental treatments are also covered. This information is offered to help the patients more effectively discuss treatment options with their doctor.

Appendixes include a directory of resources and a guide to cancer information online, which lists cancer databases and Internet resources. This is an essential guide for all public and health sciences libraries.

The Yale guide to children's nutrition. William V. Tamborlane and Janet Z. Weiswasser. Yale University Press, 1997. 415 p. (ISBN 0-300-07169-8), $40.00; (ISBN 0-300-0007169-8), pap. $18.00.

This new guide to children's nutrition covers all the topics most parents are interested in and then some. While short on practical advice in many of the subject areas, some of the topics covered are often not found in other similar nutrition books.

The standard topics covered include normal growth and development, basic nutrition, feeding from infancy through adolescence, overweight children, the picky eater (aren't they all?), and vegetarianism and children's health. Special topics include childhood obesity, food allergies, high blood cholesterol, the child with cystic fibrosis or diabetes, feeding the child with cleft lip and palate, and diet and the child with Attention Deficit Hyperactivity Disorder. A chapter on fast foods and restaurants gives advice on choosing more healthful menu selections.

A section with recipes (there are 67) includes imaginative dishes from the "most respected chefs in the United States". Recipes for infants include carrot and potato puree and french green lentil and rice puree. Dishes for older children include banana split pancakes, cantaloupe soup, waldorf tuna salad, peanut butter bread (not the spread on the bread kind), and baked elbow pasta with shrimp and zucchini. Don't worry - desserts haven't been ignored. How does maple glazed tropical fruit salad sound, or perhaps super cherry tiramisu?

Growth charts, recipe conversion tables, and recommended dietary allowances are included in appendixes.

When a parent has cancer: a guide to caring for your children. Wendy Schlessel Harpham. HarperCollins, 1997. 164 p. (ISBN 0-06-018709-3), $24.00.

A diagnosis of cancer can be particularly devastating for parents of young children. How can the parent face treatments and long periods of recovery and still care responsibly for their children and at the same time answer the many questions that arise about the illness.

Wendy Harpham's helpful book gives parents who have cancer the expert guidance they need to help their children through a parent's diagnosis and treatment, remission and recovery, and, if necessary, confronting the possibility of death. Harpham, who is a physician and the mother of three young children, speaks from experience having lived through a diagnosis and subsequent treatment for non-Hodgkins lymphoma. Her earlier books (Diagnosis cancer: your guide through the first few months, 1992; After cancer: a guide to your new life, 1994) chronicled her struggle in fighting the disease and coping with its consequences.

With understanding and sensitivity, she discusses ways to meet the child's fundamental needs and emphasizes the importance of being honest about the gravity of the illness. The emphasis here is on helping the children cope with changes in their lives while at the same time fostering their need for reassurance and a sense of security. Harpham also expertly covers dealing with loss, grief, and fear, using play as a therapeutic tool, helping children tame their fear of death, and the special needs of teenagers, single parents, and the well spouse.

Included with this guide is an illustrated childen's book called "Becky and the worry cup", which tells the story of a seven-year old girl's experiences with her mother's cancer. The book can be read by children alone or together with a parent. A glossary and a list of resources are also included

Back to the Table of Contents

UCHC RECENT ACQUISITIONS

The following titles were recently added to the UCHC Library collection and may be of interest to public libraries:

Fibromyalgia and chronic myofascial pain syndrome : a survival manual. Devin Starlanyl and Mary Ellen Copeland. New Harbinger Publications, 1996. 401 p. (ISBN 1-57224-046-6), $19.95. UCHC Library Call #:WE/544/S795/1996.

Twenty-six million Americans suffer from fibromyalgia (FM) or myofascial pain syndrome (MPS). The symptoms of both of these conditions include chronic, widespread musculoskeltal pain, accompanied by multiple tender or trigger points, painful or restricted movement, and persistent fatigue. Often these conditions are misdiagnosed and patients may spend many years searching for a specific reason for their symptoms.

This comprehensive guide offers advice on managing these conditions. Descriptions are given for each, including similarities and differences between the two. Patients are taught how to evaluate their own symptoms and to identify the tender or trigger points that are crucial for treating them. Up to date information on treatments is offered, including medications, a nutritional program, exercise, and other "healing tools".

Life issues such as managing the conditions in order to keep working, disability rights, travel, and finding a primary care physician are also discussed. A list of resources, a reading list, and a directory of suppliers of health care items are included in appendixes.

Living with Parkinson's disease. Kathleen E. Biziere and Matthias C. Kurth. Demos Vermande, 1997. 160 p. (ISBN 1-888799-10-2), $24.95 (UCHC Library Call #: WL/359/B625/1997.

This book was written for those who have been diagnosed with Parkinson's disease, their family members and friends, and for physicians and health care providers. The content is divided into two main sections: the disease and its management and research aimed at improving the management of Parkinson's disease. The first section describes what the disease is, how it is treated and managed, surgical treatments, and promoting optimal health while living with Parkinson's disease.

The second section gives a helpful overview of research currently being conducted on treatments for Parkinson's disease. More specifically, developments in improving the effectiveness of levodopa, the search for longer acting agents, and improvements in the management of late-stage complications of the disease are discussed. Information on clinical trials and their role in the development of new therapies is covered in a separate chapter. Although somewhat technical, this information can be valuable for many patients and their families. A glossary and a brief list of resources are included.

Nutrition almanac. 4th ed. Gayla J. Kirschmann and John D. Kirschmann. McGraw-Hill, 1996. 494 p. (ISBN 0-07-034922-3), $16.95. UCHC Library Call #:QU/145/K61/1996.

This purpose of this nutrition guide is to help readers develop a personal nutrition plan and to serve as a handy reference to quickly answer simple questions regarding food, nutrition, and health. General topics covered include the role of nutrition and health, exercise, basic components of foods, vitamins and minerals, and diseases and medical conditions that may result from an imbalanced intake of nutrients. Herbs are also discussed with a brief summary of common types and how herbs may be used to treat or prevent common ailments. Food composition tables are included as are discussions of specific foods and beverages.

Although a bibliography is included, this guide's main drawback is the lack of specific references to research related to the subjects covered. The bibliography includes, for the most part, secondary sources, most of which are popular nutrition books. Credentials of the authors are not given, except for a brief mention that John D. Krischmann is director of his own nutrition consulting company and that his daughter Gayla works for him.

This is an optional purchase for public libraries and for health sciences libraries. For more complete and authoritative nutrition information try The concise encyclopedia of foods and nutrition or The American Dietetic Association's complete food and nutrition guide.

Your dieting daughter : is she dying for attention? Carolyn Costin. Brunner Mazel, 1997. 217 p. (ISBN 0-87630-836-1), $19.95. UCHC Library Call #: WM/175/C844y/1997.

Over fifty percent of females between the ages of 11 and 13 see themselves as overweight. By the age of 13, 80 percent have attempted to lose weight and 10 percent report the use of self-induced vomiting to achieve their weight loss goal. Dieting to extremes, or anorexia and bulimia, have become serious health issues facing young girls. Parents are often at a loss to know how to deal with the complex issues related to these conditions.

This guide, written by the director of the Eating Disorder Center of California who is also a recovered anorexic, offers helpful advice for parents and other family members. Costin describes the symptoms of the conditions, their psychological causes, and how the conditions can be prevented. Expert guidance with concrete examples is given to help parents cope with different situations that may occur.

Costin also analyzes factors in our society that contribute to the development of these disorders. She offers a useful evaluation of popular weight loss programs, how they are supposed to work and why they often are not successful. Appendixes include a minicourse on nutrition, a table of recommended daily allowances, a list of resources, and a bibliography.

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Healthnet News is written by Alberta L. Richetelle with the assistance of Judith Kronick.
If you have questions about anything in the newsletter or about Healthnet services for Connecticut public libraries, please call 860/679-4055; e-mail address: richetelle@nso.uchc.edu.

(c) 1997 University of Connecticut Health Center. All rights reserved.
Lyman Maynard Stowe Library
University of Connecticut Health Center
Farmington, Connecticut
The URL for this page is http://library.uchc.edu/departm/hnet/spring97.html