A HEALTH RESOURCE GUIDE
Consumer Health Information Network
This Guide is intended to assist parents gathering information about their children's health and development. It includes information about physical, mental, and dental health. It also incorporates information about health insurance, communicating with a child's physician, and resources for selecting a doctor for your child, as well as other children's health-related topics.
The Guide includes Internet websites as well as print resources. Although advertisements may appear on some websites in the Guide, the University of Connecticut Health Center Library makes no recommendations for these products or services nor endorses them.
Many of the books included may be available at your public library. Connecticut residents may borrow books from other public libraries within the state with their own town library card. Your public library may be willing to request books for you from other libraries through the Interlibrary Loan System. Some books, such as directories, may be classified as reference books and available only for use in the library.
Each book citation includes the book's unique International Standard Book Number (ISBN), which identifies the book and is helpful when ordering a specific title.
Since this resource guide is a publication of Healthnet: Connecticut Consumer Health Information Network,a program of the Lyman Maynard Stowe Library, University of Connecticut Health Center, its focus is on Connecticut resources when they are available. National resources are represented as well.
YOUR CHILD'S GROWTH
American Medical Association Complete Guide to Your Children's Health. Random House, 1999. 710 p. (ISBN 0-679-45776-3).
A comprehensive, three part guide to your child's health and development. The book begins with an overview of childhood physical growth and development from infancy through adolescence. The "Caring for Your Child's Health" section includes safety instructions, information about care for illnesses and injuries, and routine medical care. The book incorporates an encyclopedia of health disorders that range from canker sores, muscle disorders, and congenital heart disease, to lead poisoning and scoliosis. There are symptom-focused flow charts that guide parents in immediate, appropriate steps to take when a child is ill (sometimes including calling your child's doctor or seeking emergency help).
Caring for Your Baby and Young Child, Birth to Age 5. revised edition. Steven P. Shelov and Robert E. Hannemann, editors. Bantam, 2004. 784 p. (ISBN 0-553-38290-X paperback)
Parenting guide from the American Academy of Pediatrics, national professional association of pediatricians. Detailed (diapering techniques, developmental milestones) and reassuring. Includes safety concerns, basic care, common health problems, and emotional development.
Caring for Your School-Age Child: Ages 5 to 12. Edward L. Schor, editor. Bantam, 2004. 624 p. (ISBN 978-0553-37992-1 paperback).
Focused on school readiness, learning disabilities, and family changes, as well as health concerns of school-aged children. A comprehensive parenting guide from the American Academy of Pediatrics.
Caring for Your Teenager. Donald E. Greydanus and Philip Bashe, editors. Bantam, 2006. 606 p. (ISBN 0-553-37996-8)
This parenting guide from the American Academy of Pediatrics discusses medical disorders common to adolescents and emotional and social pressures that adolescents face.
Taking Care of Your Child. A Parent's Illustrated Guide to Complete Medical Care. Donald M. Vickery, Robert H. Pantell, and James F. Fries. Da Capo Press, 2005. 534 p. (ISBN 0-7382-1037-4)
A practical guide to parenting and medical care from pregnancy to a child's adolescence. Discusses growth and development, personality and behavior, as well as immunizations and allergies. Nearly half of the book consists of flow charts advising parents on care for ill or injured children.
The Yale Child Study Center Guide to Understanding Your Child. Healthy Development from Birth to Adolescence. Linda C. Mayes, M.D., Donald J. Cohen, M.D., John E. Schowalter, M.D. and Richard H. Granger, M.D. Little Brown and Company, 2003. 560 p. (ISBN 0-316-79432-5 paperback)
Written by physicians and other professional staff at the Yale Child Study Center, this is an easy-to-understand encyclopedic guide to a child's physical and emotional development. Includes an overview of motor, cognitive, and social development. Provides a helpful, practical guide to child-rearing based on principles of child development.
An attractive, colorful, online resource, especially for adolescent and pre-adolescent girls, published by the "Celebrate Girls" community outreach program of the University of Connecticut Health Center. Brief, straightforward information related to "mind, body, and spirit" on topics such as depression, stress, "your period," self-esteem, and peer pressure.
From the Intellihealth website. "Guiding and Keeping Your Child Healthy...." Select "Healthy Kids." Links to articles on a variety of health-related articles about physical growth, behavior and development, and social development from infancy through adolescence. Also includes questions (and answers) frequently asked of pediatricians by concerned parents.
Questions from parents (with answers from the American Academy of Pediatrics, professional association of pediatricians) related to medical, social, and developmental concerns about children. Organized by stages for children ages one to twenty-one.
An informative, comprehensive, attractive website created by the Nemours Foundation's Center for Children's Health Media. Contents are reviewed by a board of physicians and psychologists. Separate sections of the website are designed for parents, children, and adolescents. The website provides straightforward, authoritative health guidance for young people. It discusses "emotions and behavior," "growth and development," as well as "medical problems."
SELECTING A PEDIATRICIAN
America's Top Doctors. A Castle Connolly Guide. Castle Connolly Medical Ltd, 2008. 8th edition. 1160 p. (ISBN 1-883769-97-3 hardcover, ISBN 1-883769-98-1 paperback)
The physicians listed were selected by peer nomination. The book is intended to focus on doctors with specialized clinical skills, not necessarily those with prominent administrative titles. Listings are organized by specialties and subspecialties of the American Board of Medical Specialties, and then by geographic region of the country. Includes specialists in pediatrics, child neurology, adolescent medicine, child and adolescent psychiatry. At the conclusion of the book there is an index by more specific "special expertise," as well as an alphabetical list by doctors' names.
Directory of Physicians in the United States. American Medical Association, annual. 4 vol.
Brief biographical information on U.S. physicians, whether or not the physician is board-certified. Includes medical school attended, primary and secondary specialty, year of licensure, and type of practice. Internet access is available at AMA Physician Select/On-Line Doctor Finder .
Folio’s medical directory of Connecticut and Rhode Island. Annual. Folio Associates Inc., 297 N. Street, Suite 212, Hyannis, MA 02601-5108.
Alphabetical listings of physicians by name, town, and specialty, including pediatrics. Includes medical education, address and phone number, and languages spoken.
Consumers' guide to top doctors.. Center for the Study of Services, 2002. (ISBN 1-88812-413-X paperback)
Prepared by a nonprofit consumer organization in Washington, D.C., this book lists more than 15,000 specialists, including pediatricians and primary care physicians, in fifty U.S. metropolitan areas, including the Fairfield, New Haven, and Hartford county areas of Connecticut. Physicians were selected for inclusion by other doctors using a peer recommendation method. Includes brief information about each physician, including address, medical school and year of graduation, and fields of board certification, if applicable.
The official ABMS directory of board certified medical specialists. Annual. American Board of Medical Specialties. 1007 Church Street, Suite 404, Evanston, IL 60201-5913. 4 volumes.
A guide to physicians who have been awarded certification by one of 24 national specialty boards, including pediatrics. Name and geographic indexes. Includes details on places and dates of internships and residencies as well as medical school attended. This information may also be accessed on the Internet at American Board of Medical Specialties. Select "Is Your Doctor Certified?" Free registration is required for searching this area of the website.
Find a Pediatrician
Online referral system from the American Academy of Pediatrics, national professional organization of pediatricians. Provides names, addresses, and phone numbers of American Academy of Pediatrics members in the area of the U.S.A. or Canada specified. Online international searching by country available as well.
Finding a Doctor for Your Child.
Background information on types of health professionals that treat children and how to interview a prospective doctor for your child. This online article recommends selecting a doctor before your child's birth and points out clues you can gather while sitting in the waiting room. On the Kidshealth website.
Finding a Certified Pediatrician.
Select "Is My Pediatrician Certified?" Search this website by location to find the names, addresses, specialties, and dates of certification of pediatricians. From the American Board of Pediatrics, the organization responsible for granting board certification to pediatricians. Updated each month. Select verification of certification by name or by location.
AMA Physician Select/On-Line Doctor Finder
The American Medical Association’s Internet directory listing credentials of M.D.’s and osteopathic physicians. Searchable by physician name or specialty (including pediatrics). Specialities refer to physician's "self-designated primary practice specialty."
American Board of Medical Specialties
A website of the American Board of Medical Specialties that allows the Internet user to search for information on board-certified physicians online. The website explains the criteria for certification. To confirm a physician's certification status, click on "Is Your Doctor Certified?" This searching area verifies board certification when searched by physician’s name. A second area of the website allows searching by specialty or geographic area. Searchers are required to register at no charge. Verification is also available through the ABMS toll-free telephone service by calling 1-866-ASK-ABMS (275-2267)and in the multi-volume print form of the Directory.
Connecticut Licensing Info Center
Website allows users to verify the license status of Connecticut health professionals by typing the name of a doctor, dentist, or other health care provider in the License Verification area of the web page. Select "Physicians and Surgeons" as license type. The verification area of the website is updated weekly. State of Connecticut Department of Public Health licensing requirements for health-related professions-- dentists, physicians, etc. appear on this website as well.
Connecticut Bureau of Regulatory Services
Connecticut Bureau of Regulatory Services quarterly online report of disciplinary actions against health practitioners in Connecticut. ("Regulatory Action Report") Requires Adobe Acrobat Reader on computer for online display. Earlier quarterly reports also on Bureau's website. Updated monthly.
Connecticut Physician Profiles
In accordance with Connecticut Public Act
99-284, the Department of Public Health publishes, on the Internet, Connecticut
physician profiles supplied by the physician. Select "Physician Profile" on the Department of Public Health
website. The profiles include physicians' biographical and educational background information, board certifications,
medical malpractice history, and hospital disciplinary actions in all states.
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How to Survive Your Doctor's Care. Pamela Gallin. Regnery Publishing, 2003. 234 p. (ISBN 0-89526-120-0).
An extremely compassionate, down-to-earth explanation of how to obtain the best medical care for your family, written by a pediatric surgeon who vividly remembers the consequences of not asserting herself to her surgeon when she suffered complications from hand surgery. Includes discussions of the "Doctor's Eye-View of Medicine," "the invisible doctors" such as radiologists and pathologists who are essential to a patient's care, and the process of selecting a physician.
How to Talk to Your Child's Doctor
Practical guidance about communicating with your child's pediatrician when both you and the physician are pressed for time.
Parent Tips: Building Early Intervention Partnerships With Your Child's Doctor
Practical recommendations for selecting a physician for a young child with special needs and for enriching the parent-physician relationship. Suggestions are applicable to all parents. Online booklet on the "Medical Home" page of the website developed by the Washington State Infant Toddler Early Intervention Program (ITEIP) and the University of Washington Center for Human Development and Disabilities (CHDD). Available online in English, Cambodian, Chinese, Korean, Laotian, Russian, Spanish, and Vietnamese.
You and Your Pediatrician
A brief overview about communicating with your child's pediatrician about health concerns you may have, from the American Academy of Pediatrics, national association of the "child health experts." Recommendations about when to contact your child's physician--which situations are considered emergencies and which are routine.
Going to the Doctor
A straightforward, reassuring online article,
written especially for children, that explains the steps in a doctor's
physical examination. Similar online articles for children about visiting
a physical therapist, psychologist, dentist, speech therapist, and going
to the hospital appear on the People,
Places and Things That Help Me section of the KidsHealth website.
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CARING FOR YOUR CHILD'S TEETH
American Academy of Pediatric Dentistry
Under "Parent Resource Center" on this website, there are one page, online question-and-answer style parent education brochures focused on children's dental health topics such as x-ray safety, fluoride, dental care for babies, calming the anxious young patient, and sealants. The American Academy of Pediatric Dentistry is the national professional organization of dentists who specialize in treating children.
Information on tooth development, a child's first dentist visit, and the effect of pacificers and baby bottles on tooth growth. Reviewed by dentists from the Columbia University School of Dental and Oral Surgery.
Dental Care from the drSpock.com website
Brief one page reviews of children's dental health topics, such as pacifiers, braces, teen tooth care issues, written by a Connecticut pediatric dentist.
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POSITIVE CHILD REARING
American Medical Association. Complete Guide to your Children’s Health. Edward S. Traisman, editor. Random House, 1999. 710 p. (ISBN 0-679-45776-3) Out of print but available at some public libraries.
Children’s emotional as well as physical development are described. Discusses special child raising circumstances such as the adopted child, children whose parents are divorced, children under stress, children experiencing grief. Practical, specific parenting suggestions.
Dr. Spock's The School Years. Benjamin Spock, edited by Martin T. Stein. Pocket Books, 2001. 304 p. (ISBN 0-7434-1123-4 paperback) .
Based on magazine articles for parents written by parenting expert Dr. Benjamin Spock in the 1980's and 1990's, this is a companion volume to Dr. Spock's The First Two Years. The focus is on social and emotional aspects of parenting, not illnesses or disorders. The book includes essays that highlight teaching values to children, raising self-reliant children, a father's role in discipline, stepparenting experiences, adolescent peer pressure. The topics are discussed in down-to-earth, practical terms. Additional parenting guidance is available on Dr. Spock's website.
First Aid for Babies and Children fast. Allen R. Walker, editor. Dorling Kindersley Limited, 2006. 128 p. 3rd revised edition.(ISBN 0-7566-1931-9 paperback)
Illustrated with color photographs, this guide contains clearly written, brief instructions for immediate care of childhood emergencies such as anaphylactic shock, insect stings, electrical burns, fever, and heatstroke.
Heading Home with your Newborn. From Birth to Reality. Laura A. Jana and Jennifer Shu. American Academy of Pediatrics, 2005. 306 p. (ISBN 1-58110-157-0).
A reassuring guide about caring for infants, written especially for new and about-to-be parents. Published by the American Academy of Pediatrics, professional association of pediatricians, and written by two experienced pediatricians who are mothers as well as physicians. Includes lots of practical information on feeding, establishing routines, sleep habits, bathing, diapering, car seats, traveling with infants, safety reminders, and selecting a pediatrician.
Parenting That Works. Building Skills that Last a Lifetime. Edward R. Christophersen and Susan L. Mortweet. American Psychological Association , 2003. 356 p. (ISBN 1-55798-924-9).
Published by the American Psychological Association, and written by hospital staff psychologists, this detailed book provides specific guidance on changing children's negative behaviors to positive ones. Discusses disciplining children, communicating effectively with them, and building parental coping skills. Includes recommendations for bedtime routines, toilet training, dealing with childhood aggression, whining, and tantrums.
Put Yourself in Their Shoes : Understanding How Your Child Sees the World. Barbara F. Meltz. Dell Press, 1999. 256 p. (ISBN: 0-440-50823-1 paperback)
A warm, insightful view of the thoughts and concerns in the minds of children that impact their everyday behavior, written by the veteran parenting columnist for the Boston Globe. Focuses on problems by developmental stage rather than by age. Offers practical suggestions on effective communication with children of a variety of ages. The author's observations and anecdotes illustrate the needs of children that they often fail to express to their parents.
Raising an Emotionally Healthy Child When a Parent Is Sick. Paula K. Rauch and Anna C. Muriel. McGraw-Hill, 2006. 213 p. (ISBN 0-07-144681-8)
Compassionate, realistic child-rearing advice for an extremely difficult circumstance-- when a child's parent is experiencing a serious, sometimes life-threatening illness. Written by two Harvard Medical School child and adolescent psychiatrists with considerable experience communicating with parents through the Massachusetts General Hospital Cancer Center parenting program, Parenting at a Challenging Time (PACT). The book's focus is on the perspective and emotional growth of the child rather than the needs of the ill parent. Discusses how children of different ages understand illness, how to gather a parental support system, communicating effectively with your child, planning hospital visits, etc.
Raising Resilient Children. Robert Brooks and Sam Goldstein. McGraw-Hill, 2002. 336 p. (ISBN 0-8092-9765-5 paperback, ISBN 0-8092-9764-7 hardcover)
A compassionate, practical guide to rearing confident, self-assured children capable of solving problems that arise in school, within the family, and among friends. Written by experienced child psychologists, its realistic "guideposts" are illustrated with case histories from the authors' experiences. An encouraging, positive approach for parents. A complementary book, Nurturing Resilience in Our Children, was published by the authors in 2002. It illustrates the principles of Raising Resilient Children by providing responses to parents' specific questions on child-rearing. The Power of Resilience, with recommendations for adults, was published by the co-authors in 2004 and Raising a Self-Disciplined Child in 2007. Additional guidance at the authors' website.
The Ten Basic Principles of Good Parenting. Laurence Steinberg. Simon and Schuster, 2005. 207 p. (ISBN 0-7432-5115-4 paperback)
Basing his recommendations on research about effective child-rearing, psychologist Dr. Laurence Steinberg of Temple University presents a realistic, understanding guide to parenting children from infancy to adolescence. He illustrates each of the "10 basic principles" (e.g. Adapt your parenting to fit your child, Be involved in your child's life, You cannot be too loving, Be consistent, etc.) with specific examples of what to do in order to raise independent, compassionate children..and what not to do.
Your Child's Health. Baron D. Schmitt. Bantam Books, 2005. 686 p.(ISBN 0-553-38369-8 paperback)
Direct, brief advice on a wide range of medical and behavioral child-rearing issues. The recommendations focus on children from infancy to twelve years old. The book is especially helpful for its beginning section on dealing with emergencies. In addition to providing a great deal of parenting advice, Dr. Schmitt, professor of pediatrics at the University of Colorado School of Medicine, encourages parents to "trust your intuition, you know your child better than anyone else."
American Academy of Family Physicians
Under the "Parents and Kids" section, there are hyperlinks to a number of mainly one page online informational sheets on a variety of health topics written for parents, teenagers, and children, including "Babyproofing Your Home," "Eating Disorders," and "Changing Your Child's Behavior."
Connecticut Poison Control Center
In addition to the 24 year emergency advice service provided to callers by phone at 1-800-222-1222, the statewide Connecticut Poison Control Center provides advisory information on its website about specific poisons. The website also includes information about making your home "poison-proof" and safe for children. There is a cartoon-style educational section of the website especially for children in grades one to six, teachers, and babysitters. 1-800-222-1222 can be dialed from any U.S. state to connect you with the local state poison control center.
Facts for Families
Published by the American Academy of Child and Adolescent Psychiatry.
Each one page fact sheet provides an overview of a topic related to children’s emotional needs or problems, such as sleep problems, depression, TV violence. Available in Spanish, Polish, Icelandic, and French as well as English.
Kidshealth.org for Parents
Attractive, practical website with separate sections for parents, children, and teens. Focuses on health and child rearing.
Published by the Alfred I. duPont Hospital for Children and the Nemours Children's Clinics. Parenting section on “emotions and behavior” includes more than thirty articles on topics such as childhood stress, coping with anxiety, attention disorder, a parent being deployed during wartime, and temper tantrums. Includes a section on "positive parenting."
New York University Child Study Center
Practical parenting advice. The "A-Z Disorders Guide" discusses symptoms and treatments for anxiety, learning disorders, substance disorders, and others. "The Parent Letter," containing advice on parenting issues for school-age children, is published monthly and available online. It is published in English, Spanish, Korean, and Chinese.
Safe Kids USA
Information on safety tips while bicycling, riding in a car, swimming, caring for an infant, etc.; product recalls; child safety laws and regulations; and safety programs in Connecticut.
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OBTAINING HEALTH INSURANCE FOR YOUR CHILD
Hyperlinks to financial assistance opportunities from a variety of federal agencies and organizations. On the website of the National Library of Medicine's MedlinePlus consumer health information website.
Insure Kids Now!
Questions and answers about the federal program, administered by each state, that provides free or low-cost insurance to children whose families meet specific income eligibility guidelines. National toll-free phone number is 1-877-543-7669. Internet user can link to the Connecticut HUSKY program website or other states' websites from this Question and Answer Page.
HUSKY Plan: Healthcare for Uninsured Kids and Youth in Connecticut
Comprehensive health care insurance plan for Connecticut children up to age 19 who have no health insurance. Free or graduated cost premiums are based on family size and family income. Phone 1-877-CT-HUSKY.
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ORGANIZATIONS THAT MAY HELP
1-800-445-2722 Toll-free number for parents of children ages three to twenty-one years of age concerned about their child's development. Staffed by parent consultants from the Connecticut Parent Advocacy Center. Consultants will provide parents with information and direct them to appropriate resources and agencies to assist their children.
Connecticut Birth To Three System
1-800-505-7000. Statewide referral service for infants and toddlers under three years old with "significant developmental disabilities or delays." Parents with concerns about their children's development will be helped in the evaluation process and in accessing services for their children. The program also serves children with a diagnosed medical condition. State and federally funded program. Information available in Spanish and English on the website.
INFOLINE directory of community services.
There are six regional Infoline directories describing community service agencies within Connecticut; arranged by name of agency and by type of service.
Callers to Infoline’s statewide toll-free numbers(211) will be directed to appropriate service agencies and organizations. Infoline is staffed with caseworkers who are available to assist callers twenty-four hours a day, throughout the year. Bilingual English/Spanish speaking caseworkers are on the staff. The service is accessible to the hearing-impaired by TDD. Includes Maternal and Child Health Infoline, "toll-free access point for information and referrals to health services in Connecticut, particularly for low-income, uninsured pregnant women and children with special needs."
The self-help directory: a guide to Connecticut and national groups. annual. New Haven, CT. Connecticut Self-Help/Mutual Support Network.
An annual guide to local and national support groups, many health-related. Includes parenting and family related support groups. Phone (203) 624-6982 for updated information.
Programs that help people in Connecticut. Benefits Available/Who is Eligible/Where to Go.
Annual booklet produced by Northeast Utilities and the Connecticut Association for Human Services. Overview of federal, state and local programs that provide assistance to Connecticut residents. Includes details on health programs.
To obtain a copy, write to Northeast Utilities Community Relations, Box 270, Hartford CT 06101-8362 or contact Connecticut Association for Human Services, 110 Bartholomew Avenue, Hartford CT 06106-2232, phone (860) 951-2212. You may download this publication from the website of the Connecticut Association for Human Services. Available in Spanish as well as English.
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Straight Talk about Your Child's Mental Health. Stephen V. Faraone. Guilford Press, 2003. 389 p. (ISBN 1-57230-894-X hardcover, ISBN 1-57230-631-9 paperback)
Enriched by charts of "Fast Facts" about children's mental health and "Road Maps" detailing treatments, this is an understandable, comprehensive overview of mental disorders in children. It is directed toward parents in an initial exploration of finding professional help for their children. In addition to information about causes and symptoms of mental health problems, there are guidelines on gathering information about a child before an initial therapy session and preparing a child for a psychological evaluation. There are practical suggestions for navigating the mental health care system and working with the child's school.
What Every Child Needs for Good Mental Health
Unconditional family love, "appropriate guidance and discipline" and play with other children are among the recommendations for children's mental health, according to the National Mental Health Association. This online fact sheet explains how each of six important parenting guidelines can be implemented.
Child Mental Health
A collection of hyperlinks to brochures, organizations, and websites about diagnosis, symptoms, prevention, treatment, and research related to child and adolescent mental health. Includes a link to a glossary of mental health terms. From MedlinePlus , a National Library of Medicine website for health consumers.
Connecticut Department of Mental Health and Addiction Services
Includes information on how to find services, including 24-hour crisis intervention services, within Connecticut towns. Has a resource guide to other advocacy and support organizations with links to their websites, as well as information about legal rights advocates.
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Feeding Your Child for Lifelong Health. Susan B. Roberts, Melvin B. Heyman, and Lisa Tracy. DIANE Publishing Co., 2004. 353 p. (ISBN 0-7567-7249-4)
An understanding, consumer-friendly book, based on research on children's food and nutrition needs as a basis for life-long health. Information about introducing new foods, appetite characteristics as your child ages, sample meals --and a few healthy recipes! Chapters focus on nutrition requirements of specific age groups. Appendix includes lists of food sources of iron, calcium, and other nutrients, and standard growth charts.
Food Fights: Winning the Nutritional Challenges of Parenthood Armed with Insight, Humor, and a Bottle of Ketchup. Laura A. Jana and Jennifer Shu. American Academy of Pediatrics, 2007. 250 p. (ISBN 1-58110-244-5)
Two experienced mothers and pediatricians offer practical guidance on persuading children to eat healthy, nutritious meals while avoiding conflicts between parents and children. Includes milestones on nutrition-related behavior, information about appropriate vitamin use, and advice about feeding children when they are sick.
Food Allergy and Anaphylaxis Network
Separate sections of the Food Allergy and Anaphylaxis Network website are directed to parents, children, and teens. Website includes real-life suggestions on avoiding food allergens and coping with food restrictions. Includes food manufacturer notices of ingredient changes ("Ingredient Notices").
Practical suggestions, including snacks, to help make it easier for children to eat healthy foods. From the Kidshealth website of the Nemours Foundation. Links to related nutrition articles on the website for parents, children, and teenagers. Includes links to other recommended websites with additional nutrition information.
Healthy Habits for Healthy Kids
From the American Dietetic Association, a nonjudgmental, realistic online guide to encouraging children to establish lifelong healthy eating and exercise habits. Recommendations on making gradual, step-by-step changes. Includes suggestions for healthier choices when dining at fast food restaurants, healthy snack ideas, and an outline for a balanced diet.Back to Contents
GATHERING INFORMATION ABOUT YOUR CHILD'S HEALTH AND ILLNESSES
American Academy of Pediatrics Guide to Your Child's Symptoms. The Official, Complete Home Reference, Birth Through Adolescence. Donald Schiff and Steven P. Shelov, editors. Villard, 1997. (ISBN 0-375-75257-9).
Questions about specific symptoms your child may be experiencing with information on its "possible cause" and "actions to take" when they are needed. Information presented in easy-to-read chart format. Includes an illustrated first aid manual and a guide to your child's safety.
Making informed medical decisions. Where to look and how to use what you find. Nancy Oster, Lucy Thomas, Darol Joseff. O'Reilly, 2000. (ISBN 1-56592-459-2 paperback).
The three different perspectives of the authors--a physician, a medical writer, and a medical librarian--enhance the comprehensive outlook of this beginner's guide to consumer health research. The book discusses types and characteristics of information resources, planning and prioritizing research, search strategies, finding and researching clinical trials, effective communication with a doctor, and where to find support. Interspersed with informative quotes from patients and family members about their experiences.
Merck manual of medical information--second home edition. Robert M. Berkow, editor in chief. Simon and Schuster, 2004. (ISBN 0-7434-7734-0).
An authoritative, comprehensive guide to the diagnosis and treatment of diseases, written for the health consumer. The fulltext of the Merck manual of medical information- second home edition is available on the Internet. Includes a section on "Children's Health Issues."
Consult the Reference Librarian at your public library for assistance in finding information about your child's health. If your library cannot provide the information you request, you or the librarian, if located in Connecticut, may contact Healthnet: Connecticut Consumer Health Information Network at the University of Connecticut Health Center Library for a customized information search in the medical library.
Hyperlinks to a variety of selected online information about children's health and diseases: prevention, treatment, coping, etc., from the MedlinePlus website published, especially for health consumers, by the National Library of Medicine of the National Institutes of Health.
Evaluating Health Information
A collection of articles and brochures related to finding accurate health information, from the MedlinePlus website from the National Library of Medicine of the National Institutes of Health.
Child and Family Webguide: Parent Information on Child Development Research
Developed by Tufts University, this site describes and evaluates websites that contain research-based information about child development. A brief review of each website is available online. Categories include education and learning, health and mental health, family and parenting, and typical development, resources and recreation. The rating system evaluating each website is explained.
Meet Dr. Greene
A pediatrician on the faculty of Stanford University School of Medicine, Dr. Greene's online responses to parents' questions appear on his website. There are separate sections for health-related questions from children and teenagers and Dr. Greene's responses. There is also a health encyclopedia on the website.Back to Contents
BEING YOUR CHILD'S HEALTH ADVOCATE
Your Child in the Hospital. A Practical Guide for Parents. Nancy Keene and Rachel Prentice. O'Reilly, 1999. (ISBN 1-56592-573-4).
This book provides a variety of suggestions for communicating with hospital staff and assuring competent hospital care for your child. It includes specifics about effectively parenting your child and her siblings while your child is hospitalized, as well as guidance on maintaining records, negotiating with your insurance company, and keeping close watch on your child's procedures and lab tests. This is a helpful, practical, and detailed guide to coping with a challenging and difficult situation. Also available in Spanish.
20 Tips to Help Prevent Medical Errors in Children
Specific suggestions for proactive ways to communicate with health care professionals to prevent medical mistakes during your child's care. Questions to ask before medication is dispensed, in advance of medical tests, a hospital stay, and surgery. Requires Adobe Acrobat Reader on computer.
Connecticut Parent Advocacy Center
Published by the CPAC, a "statewide nonprofit organization that offers information and support to families of children with any disability or chronic illness, age birth through 21," this website includes a legislative update and links to various disability sites. There is also an online list of the organization's resource collection about children with disabilities that includes fact sheets, pamphlets, books, and videotapes which can be borrowed.
A Parent's Guide to Special Education in Connecticut 2007
An online booklet describing special education services and eligibility in Connecticut, steps for obtaining services for your child, and how to appeal if services are denied. Published online and in print form by the Connecticut State Department of Education.
Partnering with Your Child's School
Guidance for parents of children with special health or mental health care needs in communicating effectively with their child's school. What services to expect from the school, what to do if you don't agree with the school plans for your child, etc. Available in English and Spanish.Back to Contents
NEWS ABOUT CHILDREN'S HEALTH
In the News
On the parents' section of the Kidshealth website. Topical overviews of news related to children's health. Links to related news articles and organizations and websites that provide additional information.
Current news reports, under "Latest News," discussing children's health, from government agencies and news syndicates, such as Reuters and United Press International. On the MedlinePlus consumer health website of the National Library of Medicine.
Children's Health Headlines
From the Health News section of the Aetna Intellihealth website. Current month's news articles focused on children's health concerns, from news syndicates such as the Associated Press and the New York Times News Service.Back to Contents
LONG TERM PLANNING FOR CHILDREN WITH SPECIAL NEEDS
Laying community foundations for your child with a disability: How to establish relationships that will support your child after you're gone. Linda J. Stengle. WoodbineHouse, 1996. 217 p. (ISBN 0-933149-67-0)(Out of print. May be available at some public libraries.)
Emphasizes the need to plan social and family continuity for your dependent child after your death. Detailed practical, compassionate suggestions on encouraging friendships, establishing social networks, planning residential options, selecting long-term advocates and guardians.
Planning for the future. Providing a meaningful life for a child with a disability after your death. L. Mark Russell, Arnold E. Grant, Suzanne M. Joseph, Richard W. Fee. American Publishing Co, 1995. 440 p. (ISBN 0-9635780-0-6)(Out of print. May be available at some public libraries.)
With its focus on the legal aspect of planning, this comprehensive book outlines how to prepare a life plan for a child's future, including residential preferences and detailed personal daily preferences that will provide continuity for the individual's future comfort. Includes sample letters of intent and living wills. Numerous hypothetical family stories highlight important details to consider in planning.
Exceptional Parent magazine
Articles on financial planning for children with special needs are included on the website of Exceptional Parent magazine. Free online registration is required for access to a limited selection of articles. Some Connecticut libraries have subscriptions to the more complete, print version of the magazine.
PLAN of Connecticut, Inc.
Nonprofit organization that manages "trusts set up by families for the benefit of their disabled members." Trusts do not require any minimum funding level. Originally established by families of children with disabilities.
Special Needs Estate Planning Guidance System
From the website of the National Alliance on Mental Illness, nationwide patient advocacy organization. Detailed explanation for families about the process of establishing a special needs trust.
With Open Arms: Embracing a Bright Financial Future for You and Your Child With Disabilities and Other Special Needs
A lengthy but clearly written guide about many aspects of providing financial support for a child with special needs, on the website of the Easter Seals organization. Free online registration required for Internet access to the full text of the guide.
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This resource guide was compiled by Judith Kronick, Healthnet Reference Librarian. If you have suggestions for this list, please contact email@example.com.
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Last Updated: July 29, 2008.
Copyright 2008. All Rights Reserved.
Copyright 2008. All Rights Reserved.